What people with Down syndrome can teach us about living in the moment
SALT LAKE CITY — When Milo Benton was born four months ago, there was a small crisis with his breathing. It was quickly resolved, but the hospital staff wanted to check him over more thoroughly. So Stephanie and Adam Benton gave their new baby a quick squeeze and off he was whisked to the newborn intensive care unit.
“You worry your whole pregnancy about your baby being healthy,” said Stephanie Benton, 34. “When he was born, he had all his limbs and he looked just fine. I thought they were just being extra careful.”
The baby was soon back in Stephanie’s arms and while Adam videotaped, she did a meet-our-new-miracle commentary on Milo’s features: “Look at this nose. I’ve never seen this nose before,” she remembers saying. “Look at this ear; it’s kind of folded over. … My goodness!” Milo was content, dozing through the narrative, eyes closed.
“For two hours, I was the most happy, calm person. I was just so grateful to be done with the pregnancy. I had a healthy baby. Then we received news that hit us between the eyes,” Stephanie said.
Steve Griffin, Deseret News
Stephanie Benton holds her son, Milo, as he gets sleepy before his afternoon nap at their Salt Lake City home on Tuesday, March 12, 2019. Stephanie and her husband, Adam, did not know Milo had Down syndrome until he was a couple of hours old. Now they’re figuring out what that will mean.
Doctors said Milo had Down syndrome, the most common chromosome disorder affecting babies. About 6,000 Americans are born each year with the condition, caused by a full or partial extra copy of chromosome 21. The name “Trisomy 21” may explain why World Down Syndrome Day is marked on March 21 — “3/21” — each year around the globe, …read more
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